Achieving Justice in Genomic Translation (Innbundet)

Re-Thinking the Pathway to Benefit

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Innbinding: Innbundet
Utgivelsesår: 2011
Antall sider: 224
Forlag: Oxford University Press Inc
Språk: Engelsk
ISBN/EAN: 9780195390384
Kategori: Helse- og sosialfag
Omtale: Achieving Justice in Genomic Translation
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.

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